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Huntingtons Disease & Families

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Huntingtons Disease & FamiliesIllnesses > Genetic Disorders
This webring links sites related to Huntington's Disease. Sites may include resources for sufferers, caregivers, family members seeking support and advice, as well as information for medical professionals and researchers.




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And an improvement... - This is the most oddly random improvement and I'm not sure how to explain it. After all that doctor mess in Dec. I somehow got it into my head that I should go back on the Depo-Provera shot. I noticed that my gastoparesis got a lot worse around my cy... - 2012/01/18

Good news for a change - I got to see the famous EDS specialist Dr. Brad Tinkle! I had made this appointment several months ago not sure if I'd even be able to make it down. But I did! Luckily it didn't snow that day. Not a trace of snow that day. It was kind of a tiring tri... - 2012/01/18

Rude inconsiderate people at the holidays! - Again I am floored. Apparently there is someone at work who complained I am eating during work hours? I am once again very upset. It is upsetting to deal with health issues and then to have rude, inconsiderate and petty people to deal with on top o... - 2011/12/27

Dealing with it on my own. . . - So after being extremely pissed off at all doctors for about a week I decided I was on my own for now. I Googled gastroparesis and looked up what tips I could. Turns out there are LOTS of other EDSers dealing with this same nasty problem. There ARE s... - 2011/12/16

Not a happy camper - It has taken me a couple weeks to post this because I am extremely unhappy with my doctor and unsure what to do. He did diagnose me with gastroparesis but he said it was "mild." When I asked the nurse on the phone about the other findings of the scop... - 2011/12/16

Gastric emptying study - This test actually sort of sucked more than the upper endoscopy. They made me eat egg beaters laced with some nasty radioactive dye or something. I don't eat eggs anymore, so they felt like a big pile of rocks in my stomach and I felt very queasy... ... - 2011/12/01

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Brenda's Place
I hope with my site that I can bring public awareness to the dreaded disease called Huntingtons, through personal stories of family and friends, and with links to other very informative web sites.
Huntingtons and Me
Here how H.D. has affected my life and how we come to terms with this affliction

Click here to preview and visit the 2 member sites in
Huntingtons Disease & Families
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· Community Created 04/15/1998
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