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Latest Member Updates
My good shoulder has gone bad! - I'm not sure what I did but I've managed to screw up my "good" shoulder! We did a lot of renovations on our house during the past 2-3 mos. I did some painting. . . some moving of stuff and some redecorating. The heavy lifting and floor installation was done by someone much stronger but still somehow I managed to do something very, very bad to my sh... - 2012/04/30 I have come to despise all holidays. - I used to LOVE holidays! I would get all sentimental, I loved decorating and making the special food, etc. Now that I have all these health and food challenges I see them as nothing more than a huge pain in the rear. Even church is a pain, because I sing in the choir and our choir director tries to make us feel guilty if we don't make it to every ... - 2012/04/19 Medication fail! - So, I tried the Arthrotec Dr. Tinkle had recommended. First I noticed there was AWESOME pain relief and I got pretty excited. Then after about 4 days I noticed not-so-awesome stomach weirdness kicking in. At first I didn't care because I was enjoying the pain relief too much. In fact I used up all my samples and tried to get more but my insurance c... - 2012/04/19 Olivia has gained her angel wings. - We are heartbroken to post that Olivia passed away on Sunday, March 25, 2012. She fought as hard as she could but just had no strength left. Her obituary is here . Thank you for your prayers! - 2012/03/27 What I had been dreading. Not so bad. - I finally made it to my family doc. to discuss Dr. Tinkle's recommendations. I was a little nervous because this doc has made me feel rather stupid in the past, and laughed me off. But I guess after 7+ years of numerous health problems he has finally seen that I am not making stuff up, and I am handling things responsibly and as best I can! I broug... - 2012/03/08 Another month gone already! - I can't believe February is over already. It really flew by. I took a whole week to re-do my kitchen cabinets which really caused a lot of pain and flared my stomach up again. But it just might have been worth it, because my kitchen cabinets look awesome now. Since then my stomach has been flaring up about once a week but nowhere near what it was ... - 2012/02/29
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ONLY GOD Preview
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"ONLY GOD" is based on our trials & struggles we been through the last 4 years. It tells about what we have learned through them. Only God brought us through these trying times. How I have dealt with Ehlers Danlos Syndrome. All praise, glory & honor goes to God. God bless, Jim N Carolyn Barber
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A sampling from our Member Sites(s) Use the link above to review/visit
ONLY GOD
"ONLY GOD" is based on our trials & struggles we been through the last 4 years. It tells about what we have learned through them. Only God brought us through these trying times. How I have dealt with Ehlers Danlos Syndrome. All praise, glory & honor goes to God. God bless, Jim N Carolyn Barber
BITS N PIECES OF GOLD
Jesus Christ is Lord of Lords & King of Kings. This site is to uplift Jesus before man. We are here to help, encourage & give hope to people.My daily walk living with Ehlers Danlos Syndrome (EDS). May God bless & keep you in His loving arms.Carolyn & Jim Barber
tori's.eds.site
A personal webpage with a section about Ehlers-Danlos Syndrome.
Surviving Chronic Illness: Ehlers-Danlos Syndrome
This site is dedicated to the ongoing journey of emotional and spiritual growth in the face of physical deterioration. Join Susan S. in her day-to-day battles where victories are celebrated and defeats are sorrowfully appreciated for their lessons.
Joyce Norris' Page
Personal web-site of Joyce Norris who lives with EDS. Has information on EDS, CFS, FMS, and Geneology.
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Ehlers Danlos Syndrome.
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