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Cystic Fibrosis Online

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Cystic Fibrosis OnlineIllnesses > Cystic Fibrosis
The Cystic Fibrosis web ring is a collection of web sites that share a common bond. CF is the number one genetic killer of children and young adults in the world today. The web sites in our Ring share valuable information about this disease and how individuals cope with daily living. Some sites offer CF related links and other include personal stories.





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Latest Member Updates

Disney World and Halloween! - October was a crazy month. Let's start with the 1st of the month. We left for Chicago on Saturday to stay in a hotel near the airport for our trip to Florida! We left Sunday morning and boarded our plane to Orlando. This was mine and Brynn's first ai... - 2011/11/01

August and September 2011 - Again, I have been slacking on keeping everyone up to date on my adventures. But I assure you, we have been plenty busy. I am going to slowly update our summer. Let's start off with August. I kept myself busy by playing with my friends, driving my mu... - 2011/10/24

Catching Up - I know. I know. I've been slacking in the blog department lately. We have just been so busy. Let me take you back to May. I went and saw a dermatologist because the site where my PICC line was sometimes causes me to itch and then produce a hive. The ... - 2011/07/24

Easter 2011 - We'll start off with my appointment at U of M. I weighed in at 35lbs 9oz and 40.25 inches long. Dr. Arteta thought I looked good and no changes were made at this time. We did tell him we are moving to Iowa and he said we should start making our trans... - 2011/05/10

A Quick Update with Exciting News!!! - I hope this blog entry finds everyone in good health and happiness. I wish I could say the same. We have been battling the icky cooties in this house most of the winter :( I came home sick from school on Monday, March 7th with a fever and cough. By F... - 2011/04/17

Brynn Elyse turns ONE!!! - Hello to everyone! When we last left you it was just before Valentines Day. Mommy and Daddy helped us make some delicious sugar cookies. On the 15th, Brynn went to get her first birthday pictures taken. Here are a few from her photo session. ... - 2011/03/06

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A sampling from our Member Sites(s) Use the link above to review/visit


My Sunshine
Please feel free to visit my Web site that I built in memory of my son, just 12 years of age, who
Azer's CF page
Website about our son Azer who has Cystic Fibrosis, Info about CF, and a parent's blog on CF.
Breathing Deeply: My Life with Cystic Fibrosis
I'm an adult in my mid-twenties, married, college grade, full-time scientist and a professional freelance writer, living and thriving with CF. "Breathing Deeply" is a journal of my day to day life as an active adult enjoying every moment God gives me.
Chicago Cystic Fibrosis Awareness Day
Web home of the annual Chicago CF family education day sponsored by the Chicagoland Adult Cystic Fibrosis Association. Site includes: programs, archives, links to CF on the internet, and contact information for CF clinics in the greater Chicago area.
Luke William Larson
My name is Luke Larson. I was born on December 10th, 2006 and was diagnosed with CF a few weeks later. This page is a way for my parents and I to update everyone on my adventures.

Click here to preview and visit the 10 member sites in
Cystic Fibrosis Online
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Community Stats
· Community Created 12/31/1996
· 10 active site(s)
· 0 visits today
· 61578 total visits
· Uniqueness rank: 279
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